Three years ago today I lost somebody very dear to my heart. A very close friend. Possibly the best friend that I would ever have. My mother.
I suppose I'll take this time out to tell her story. Actually, I'll let her tell them to you. These are her own words, taken from this website.
Through Hell and Back - A Few Times
by Tammy McDermott
14 January 2006
Hello, My name is Tammy and this is my story. I am a 46 year old woman. At the age of 16 (back in 1976) I suffered a massive stroke, underwent brain surgery, was comatose for 3 months and awoke to find my life totally changed. I lost my speech and my right side was totally paralyzed. After several months of rehabilitaion, I regained full speech, learned to walk with a cane and a leg brace but my right arm remained totally paralyzed. I was so young and determined that I have been able to live a "normal" life.
I soon tossed aside the cane and found "disco dancing" to be my favorite passtime. I learned to do EVERYTHING with one hand. I never felt sorry for myself and I became a very independent lady.
Ten years after my sudden "stroke", my doctor told me of a new scan that he thought would be beneficial for me. I had the MRI scan of my brain. Finally, I had found out what caused my massive stroke at the age of 16. It was an AVM. And, IT WAS STILL THERE!!! I totally freaked out. Very little was known about AVM's at that time, but my doctor said that I would most likely be okay with no futher treament. I was told that the only things that may cause concern for another bleed would be developing high blood pressure or becoming pregnant. Since I had been healthy for 10 years, I agreed with the doctor and had no further treatment.
Then, in 1989, I became pregnant. After the joy of knowing that I would have a child, I remembered what I had been told of the risk of having another AVM bleed. My neurologist at Loyola Medical Center in Maywood, IL. suggested that I be followed by high-risk OBGYN's. My pregnancy was uneventful and I delivered by C-section. I was very happy and had a healthy, beautiful baby girl.
Everything remained the same with my health. I was overjoyed. Then in 2004, I had a MRI scan for a routine check at another hospital. My doctor who is an internist consulted with a Neurologist who felt that the size of the AVM was too dangerous to go untreated. I was referred to a specialst at the University of Illinois Medical Center in Chicago, IL. He did not have my earlier 1986 MRI scan to compare to the later MRI scan. So, it was difficult to gauge if the AVM had grown. But, due to the size of the AVM, he felt that treatments should begin. The AMV was very large and required embollization treatments before it could be removed. So, he referred me to another specailist to proceed with that first step. The first embollization went smoothly, no problems. The second went smoothly, no problems. The third, well, there was a problem.
The morning following the 3rd embollization, I had a mild stroke. My speech was affected, but it was back to normal within 2 days. Thank goodness. I knew the risks of having the treatments. But now, facing a fourth embollization, I was scared. Very scared. Only 40 percent of my AVM had been removed. I was unsure of continuing the procedures.
My daughter was to start high school in 2 weeks and there was much to be done in that regard. I am single parent. I'm very fortunate to be engaged to a wonderful man. We have been together for 7 years. My daughter's father has not been a constant in her life, so I was concerned that if something were to go seriously wrong with the following embollization proceedures, what would happen to my daughter?
Before I even made a decission about continuing the embollization procedures, I had another massive bleed.
I awoke one morning in late August, 2004, I sat in the kitchen drinking my morning coffee and paying bills. Nick left for work and my daughter was on the computer. I began to feel a bit sick to my stomach and had a slight headache. I decided to lay down. I woke up several weeks later in a hopital bed at the University of Illinois Medical Center.
My daughter heard me making strange noises after I had laid down that morning. When she came to check on me, I was vomiting and non-responsive. She called Nick at work and called an ambulance.
I was rushed to Swedish Covenant Hospital, where Nick and my daughter were told that I would most likely not make it thru the night. My doctor had me transferred to University of Illinois Medical Center where I had the embollization proceedures done. Much differently than my 1976 bleed, I did not have a crainiotomy to remove the blood clot. I had an EVD inserted in my brain to drain the blood.
This bleed created a new set of problems for me. Physically, I am okay - no added paralysis. However, I now have and added "invisable" disability. I am unable to drive as I lose my focus. I am unable to prepare meals that have many steps, unless I have all steps written out, ingredients measured out, a timer and a pen to check off completed steps. Even then it is difficult. My coordination is improving, however I still have a hard time writing, applying make-up and I tend to lose my footing easily. Nick gives me my medication each day, as I get confused with it. This bleed created many more problems than the first.
I try to remain positive about everything. I have always had a good outlook on life. We must play the hand we are dealt.
One more thing, when I had this last AVM bleed, I was diagnosed with stage 2 non small cell lung cancer. A portion of my left lung was removed along with 2 lymph nodes. After 3 months in the hospital, I went home, started outpatient chemotherapy followed by outpatient radiation therapy. Six months later, a PET scan indicated that my cancer was gone.
So, here I am. I've been through hell and back - a few times. I am still weak from the AVM bleed and lung cancer therapies. My plan is to begin therapy for physical, occupational, speech (for cognitive development) and psychological counseling in Spring 2006. And, I have decided not to continue with the embollization treatments for my AVM. As I see it, if it bleeds, it bleeds. I am done tempting fate.
We must remember to focus on our strengths, not our weaknesses - on our abilities, not our disabilities.
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Update: 28 June 2006
For those of you who do not know, my lung cancer is back, and it is terminal. The doc's do not have a time frame for me. Could be two more weeks. Could be two more months, Could be two more years. They just don't know.
Since the cancer has returned in the same lung, more chemo and radiation are not possible. There are two new drugs that may be beneficial, but due to my AVM (brain problem linked in my AOL profile) the new drugs may be more dangerous than beneficial to my health.
I am saying two more years. Megan has two more years of High School. That'll be good for me. I have to be here to see my intelligent, beautiful daughter graduate from high school and move on to college.
For those of you who know Nick, he needs your support and strength, now more than ever. The poor guy is keeping a smile on his face, and being the usual wisecracker that I love, but he is being torn apart with this situation. Please, reach out to him.
I have lived a good life. Until I met Nick, I thought that my marriage was the best thing that my life had to offer me. Boy, was I wrong. Nick has been the most uplifting, wonderful addition to my life - and to my daughter's. That man was sent to me from heaven. I thank God for him.
Please keep my family in your prayers.
You have all enriched my life. Thank you.
After that, all is a jumble. We soon found out that her cancer had come back- this time, it was in the bones in her leg. She had a metal rod put in and the cancer removed. About a month later, Nick (my stepdad) and I found my mom laying in bed, and she seemed to be having a stroke. We took her to the hospital, where she had a CT scan. Her cancer had spread to her brain. The tumors were putting pressure on her brain, causing the stroke-like reaction. We were told she had six months.
Mom had another brain surgery, and one of the tumors was removed. The other remained, chemo or radiation was done, and it was gone. She was then put into a rehab facility. She remained there for two weeks. We continued to watch her health decline. We knew the cancer had spread. She could no longer speak because of the toll the radiation had done on her vocal chords. We fed her ice cream and ice chips- it was all she could eat. On May 6, 2007, I revealed to her that I was expecting a baby in December. Long story short, I, at the age of 16, was trying to concieve a grandchild for my mother with my now-husband. She cried, and asked me if I was okay. I promised her that I'd make a doctor's appointment, and that was her dying wish. I made that apointment. I pushed her around in her wheelchair, and let her enjoy the view of the gardens at the rehab center.
The next day, after school (I was a junior in high school at the time), I got a call from my stepdad, who was with her. He was crying, and passed the phone to the doctor. She told me that I needed to get there quick- they were transferring her back to the University of Illinois at Chicago, where she had her cancer treatment, and that things didn't look good. I hopped my butt on a train and went straight there.
When I got there, I saw my mom. She was peaceful, but it was scary. I told her I loved her, I kissed her and told her that everything would be okay. I told her I made my doctor's appointment. I kissed her again, and left her for the very last time. I went downstairs with nick to get some coffee. When we returned, the doctor informed us that my mother had passed away. I was heartbroken, I cried, let out a few obscenities,and hugged my stepdad (he needed a hug more than I did). They all went in to see my mom one last time. I refused. I was happy that I said goodbye to her, and in a way, I felt like she said goodbye back. She was peaceful.
Later that year, I gave birth to my first daughter in that very same hospital. I felt that a piece of my mother was with her.
So here's to you mom. The one who held my hand. The former President of the PTO who busted her ass to make my school nice. The one who taught me so much, my backbone. Never does a day go by that I don't think of you, that I don't remember you hollering my name. I remember so much, and I will never forget.
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Your mom had been through hell and back but she was such a trooper. I have never met anyone with her outlook on life. She was the best that I ever had. I love her and I miss her everyday! I was so happy that I was able to get up to see her that last week before she died. We did not discuss her death but we caught each other's eye and I knew and she knew I knew... When Roy & I left the hospital that day..I told him that she was not going to be here much longer....her eyes told me.....we had that kind of connection, You are the best thing that ever happened in her life and I know that your mom is proud of you and very happy with how your life is going. I know she watches over you and your family every single day! Your mom loved you very much and told me so many, many times!!! Thank you for staying in touch with me...it means a lot to me!! oxoxox
ReplyDeleteAww thank you so much Kathy.. you are so sweet <3
ReplyDeleteMegan. Tammy must be the proudest Mother in Heaven. You are so wonderful and beautiful inside and out. You are so much like her...outspoken for the weak, strong, independant and many more ways! You have that fight that she had that I loved and mimiced. I will never forget her and how much she meant to me. I will never forget writing to you and you wrote back, "yep! thats me!". You have taken on your Mothers friends and we all love you for that. I just do not have words that can tell you how I feel about you without ever meeting you even once. I feel such a connection and I think...the reason why it was so important to find you is...she knew I needed her. She knew I would love you and you would fill that terrible void in me. How selfish of me, right? So many things I want to do for you and just where do I start? I love you, Megan and I love your family. I love how you write and I will love what you will do with your life. You keep me wondering and happy. I hope someday you will let me do something for you.....<3
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